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Two Brothers, One Uncertain Future

An illustration of two young men standing close together against a dreamy background of soft purple sky and fluffy white clouds. The man on the left wears a captain’s hat, sunglasses, a black T-shirt with a blue mountain graphic and blue shorts; he has a mustache and his arm around the other man's shoulder. The man on the right has long hair, wears a backward black cap and a light blue tank top and has his arm around the first man's waist. Above them, in bold dark blue letters, is the word “Embodied.”
Charnel Hunter

Two brothers diagnosed with a genetic mutation that almost certainly causes dementia share how they’re building their lives while preparing for symptoms of the disease, which are likely to start in their late 30s or early 40s.

What would you do if you knew your brain would stop functioning normally in just a decade? For brothers Ansel Dow, 31, and Cosmo Hinsman, 26, this isn't hypothetical. They carry a rare genetic mutation that makes frontotemporal dementia (FTD) almost inevitable by their mid-40s.

It’s the same condition that has altered the lives and personalities of their mother and five of her siblings. The brothers reveal to host Anita Rao how this genetic legacy influences their most personal choices about love, friendship and building a meaningful life against a countdown.

Ansel is a community organizer and an advocate for more research into FTD, and Cosmo holds a MFA in fiction writing.

Read the transcript

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Audrey Smith is a writer, educator, and temporary producer of "Embodied" based in Greensboro, NC. She holds a Master's degree in Secondary English Language Arts Education from the University of North Carolina at Greensboro (2018) and a Master of Fine Arts degree in Nonfiction Writing from Oregon State University (2021).
Anita Rao is an award-winning journalist, host, creator, and executive editor of "Embodied," a weekly radio show and podcast about sex, relationships & health.
Kaia Findlay is the lead producer of Embodied, WUNC's weekly podcast and radio show about sex, relationships and health. Kaia first joined the WUNC team in 2020 as a producer for The State of Things.
Amanda Magnus is the executive producer of Embodied, a weekly radio show and podcast about sex, relationships and health. She has also worked on other WUNC shows including Tested and CREEP.
Wilson Sayre is WUNC's Director of Digital Content leading our podcasting strategy and initiatives. She has worn many hats in the audio world as an editor, producer, consultant and team lead. Wilson was Managing Producer at Pushkin (previously Transmitter Media) where she helped launch shows like Am I Normal, the TED Interview and The Heist. Before that, she served as Executive Producer at Capitol Broadcasting Company and lead reporter for The City podcast from USA Today. Prior to that, she covered social safety net programs at WLRN, Miami's NPR member station. There, she founded the station's youth radio program. Wilson's work has been recognized by the Daniel Schorr Journalism Prize and national Edward R. Murrow Awards. Wilson grew up in North Carolina and enjoys playing banjo and eating chocolate, usually not at the same time.