Sickle Cell Disease

Sickle Cell Disease, Public Health
Leoneda Inge / WUNC

Editor's Note: WUNC Race and Southern Culture Reporter Leoneda Inge shares a personal account of her son, Teemer Barry, and his journey navigating sickle cell disease during his first year of college.

Sickle cell disease afflicts about 100,000 people in the United States, many of them African Americans. It is an inherited blood disorder that can cause frequent infections and chronic pain.

Sickle Cell Disease, Camp Carefree, Clinical Trials
Leoneda Inge / WUNC

Hundreds of children flock to Stokesdale, North Carolina every summer to attend “Camp Carefree.” It’s for young people – age 6 to 16 – living with a chronic illness. There is fun, but also major health updates during the week children with sickle cell disease are at Camp Carefree.